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Spinal Cord Injury Support Group Connects to Newly Injured People
The Spinal Cord Injury Support
Group at Penn State Hershey S. Medical Center is using a web site www.centralpasci.com to give support and friendship to newly injured individuals and their families. With shorter rehabilitation stays in
the hospital due to changes in regulations and insurance, this support group is becoming vital to people adjusting to spinal
cord injury and ultimately helping them reintegrate with society and helping to lead a better quality of life post injury. The
support group provides a forum through monthly meetings where people can meet to share ideas, ask questions, and gather information.
The support group has been meeting for about five years, but recently started the above new web site to try to reach people
who were unable to attend a meeting while they were in the hospital and who are unable to attend after discharge due to travel
problems or illness. With the web site, members, both new and old, can still feel connected by reading biographies on
line, chatting by email, getting answers to practical questions, or linking to other resources. Their desire is
to inspire and encourage people with spinal cord injuries to pursue new paths and maintain a healthy lifestyle both
physically and mentally. Furthermore, the website will also provide them a tool to connect to other groups pioneering
the way for new research and ways to improve their quality of life. The support group has created a peer mentoring group
for the purpose of going into the hospital to meet newly injured patients. A formal training process is required to meet the
qualifications. An outline of the training program will be shared along with personal experiences of those trainees on their
way to becoming peer mentors. Life does not end with spinal cord injury.
REGIONAL SYMPOSIUM ON HEALTH CARE and Quality of Life
Hosted By Penn State Harrisburg
CoSponsors:
Penn State Dickinson School of Law
Penn State College of Medicine
Location: CUB Building, Penn State Harrisburg
Friday,
March 2, 2007
Schedule and Poster Opportunities
Goals and Outcomes: The symposium
will examine issues related to health care and quality of life currently being addressed among regional colleges/universities
and other agencies. Participants can expect outcomes that include an expanded network of research collaborators, a compilation
of presentation abstracts, and possibly organization of ongoing discussion groups.
AUDIENCE:
All interested parties, such as faculty, students, public officials and business leaders.
SCHEDULE:
Friday, March 2, 2007
8:00 AM Registration and Continental Breakfast/Poster
Session
8:30 Welcome: Dr.
Marian Walters and Dr. Mukund Kulkarni
Session 1 (Moderator: Sam Monismith)
8:45
Eileen Kane: Molecules and Conflict: Cancer, Patents and Women's Health
(Invited speaker)
9:20 Steve Peterson: AIDS Policy in the American
States: Grading the Alternative
Policy Choices
9:35 Barbara Sims: Substance Abuse Treatment for Correctional
Clients
9:50 Heather Stuckey: Creative Expression and Meaning
in Chronic Illness:
Implications for Health Care Practice
10:05 Coffee
Break/Poster Session
Session 2: (Moderators: Katherine Pearson and
Jill Rumberger)
10:30 Ruquaiijah Yearby: Addressing Racial
Disparities in Quality in the Long-Term
Care Industry: Using Law to Create Public Health Solutions.
(Keynote Speaker)
11:20 Richard French Storrow: Medical Conscience and
the Policing of
Parenthood in Infertility Clinics
11:35 Malcolm Morrison: Hospital Patients
Requiring Post-Acute Care:
Discharge Patterns and Cost Savings
11:50 Margaret Kreher and Katherine A. Dawson:
Improving Organizational
Performance: Transitions Integrating Family-Centered Care and
Quality Partnerships
12:05 Michael Chorney and Judy Zaenglein: Regional
Partnership in Science
Career Pathways: A Novel Model of Collaboration for a Healthier
Future
12:20 PM Welcome: Chancellor Madlyn Hanes
Lunch and Poster Session
Session 3: (Moderators: Sheila Vrana
and Kathryn Kaylor)
1:15 Carol Weisman, Marianne Hillemeier, John
Botti, and Sara Baker:
Improving Health and Wellness for Women and Their Families: The
Central Pennsylvania Women’s Health Study (CePAWHS) (Invited Speaker)
1:50
E. Stephens, S.H. Felgoise, B.A. Bremer, S.M. Walsh, and Z. Simmons: The
ALSSQOL, an ALS-specific tool to measure quality of life
2:05 John
E. Neely: Our Mythic Archetypes, Consciousness, and States of
Health
2:20 Raffy R. Luquis: Cultural
competency among health professional:
Challenges in the 21st century
2:35 Roderick Lee: The Role
of Expressive and Instrumental Ties in Building
and Sustaining Online Health Communities
2:50 Michelle
White and Nancy Ehrlich: Spinal Cord Injury Support Group
Connects to Newly Injured People
3:05
Adjourn
Posters to date:
Cynthia Mara: A Study of
Publicly Funded Long-Term Care in Pennsylvania.
S.J. Stauffer and E.L. Lesher: Pathways Institute
for Lifelong Learning: A New Model for
Learning.
REGISTRATION/Participation FEE:
Advance registration is preferred. The registration fee of $ 30 ($ 10 for students) will be required of all participants to
help defray the cost of lunch and refreshment breaks. Registration information is posted at
http://www.hbg.psu.edu/research/healthcare
Direction to Campus
The entrance to Penn State Harrisburg is located on PA 230, West of Middletown.
From PA Turnpike (I-76): Get off at exit 247 (Harrisburg East). Follow PA 283 East
toward the Harrisburg International Airport. Follow signs for the airport and the college. Before entering the airport complex,
take the exit for PA 230. Turn left at the junction of 230. Proceed on 230 East approximately 1 mile. The college entrance
is on the left.
From Lancaster and points East: Take Route 283 West toward Harrisburg. Follow signs
for the airport and the college. Before entering the airport complex, take the exit for PA 230. Turn left at the junction
of 230. Proceed on 230 East approximately 1 mile. The college entrance is on the left.
From Harrisburg and points North: Follow signs for Harrisburg International Airport/283
East. Take 283 East to the Harrisburg International Airport exit. Follow signs for the airport and the college. Before entering
the airport complex, take the exit for PA 230. Turn left at the junction of 230. Proceed on 230 East approximately 1 mile.
The college entrance is on the left.
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